Our neighborhood is eager to meet friends like Filippo, Natalia and Guerlande, around the world who face similar challenges.
If you know someone, or know someone who may know someone else, dealing with this rare bone disorder, we would like to get to know one another. Please send us an email!
This is 4 year old Filippo. Visit Le Mani Di Filippo to hear this family’s story.
Meet Natalia. A 15 year old who has been faced with the destruction of MCTO her entire life. Watch her story below.
Guerlande is an 11 year old from Haiti, who was diagnosed with MCTO when she was 6.5 years old.